rpm image

Frequently Asked Questions

Learn more about the Patient and Carer Peer Mentor Program. Here are the basics.

About the Program:

The Program is built around a community of people living with advanced Parkinson’s disease who are taking Duopa, and the people who care for them. These Peer Mentors volunteer to speak one-on-one with “Mentees” about Duopa and share their own personal experiences with Parkinson’s disease.

The Patient and Carer Peer Mentor Program arranges for “Mentees” and “Peer Mentors” to talk privately by phone.

Peer Mentors are patients with advanced Parkinson’s disease using Duopa, or their carers. They have volunteered to speak one-on-one with other Parkinson’s patients and carers to answer questions and share their own experiences.

Mentees are people living with Parkinson’s disease, or people caring for someone with Parkinson’s disease, who join the program and have the opportunity to talk to a Peer Mentor.

Patient and Carer Peer Mentor Program staff arrange for a private phone call between a Peer Mentor and a Mentee on a toll-free, private call line at an agreed-upon time. The Program allows a maximum of five connections over a four-month period. The four-month communication period begins the day you register for the Program.

All phone conversations between Peer Mentors and Mentees are private. Please note: Peer Mentors do not offer medical advice and will refer Mentees to their doctors for medical advice.

Yes. Your conversations will take place on a toll-free, private call line and will not be monitored by the Patient and Carer Peer Mentor Program staff or AbbVie.

The Patient and Carer Peer Mentor Program is created for people like you—people living with advanced Parkinson’s disease, or people who care for someone with advanced Parkinson’s disease—who would like to connect with a Duopa patient or the carer of a Duopa patient.

It’s a wonderful chance to speak with people who have been in your shoes, who know the ups and downs of Parkinson’s disease and can talk about their experiences with Duopa.

The Patient and Carer Peer Mentor Program is for U.S. residents only.

Registration:

  1. Go to the Find a Peer Mentor page.
  2. Start your search. You might want to select a few details (such as age range, or whether the Mentor is a patient or carer) to fine-tune your search and narrow the list of available Peer Mentors.
  3. Select ONE Peer Mentor you’d like to communicate with.
  4. Fill out and submit the Registration Form electronically, or call the Patient and Carer Peer Mentor Program at 1-855-776-89661-855-776-8966 to register by phone.
  5. Once your Registration Form has been submitted, the Patient and Carer Peer Mentor Program staff will contact you to help arrange a time for you to connect with a Peer Mentor.

Yes. If you would like to connect with a different Peer Mentor, please contact the Patient and Carer Peer Mentor Program staff by calling, toll-free, 1-855-776-89661-855-776-8966. Please note that you may only communicate with one Peer Mentor at a time.

Communicating with Peer Mentors:

The Patient and Carer Peer Mentor Program provides Mentees the opportunity to talk privately over the phone with the available Peer Mentor they have selected.

No. Peer Mentors can discuss their experience with Duopa, but do not give medical advice. Talk to your doctor regarding all medical-related questions.

No. There is no charge for the Patient and Carer Peer Mentor Program.

The Program allows a maximum of five connections over a four-month period. Please note: The four-month communication period begins the day you register for the Program.

No. The Program is set up for Mentees to interact with one Peer Mentor at a time.

All phone conversations with your Peer Mentor or Mentee will take place on a toll-free call line.

Peer Mentors:

No. Peer Mentors are volunteers. They do not receive compensation for their time.

Simply call 1-855-776-89661-855-776-8966 and let the Peer Mentor Program staff know that you’re interested in becoming a Mentor. We’re always happy to enable people to share their experiences with others and receive the fulfillment and satisfaction of being a Mentor others can relate to.

Dropping out of the Patient and Carer Peer Mentor Program:

Yes. You can drop out of the Program at any time by calling us toll-free at 1-855-776-89661-855-776-8966.

Privacy:

AbbVie and the Peer Mentor Program will never use your information to sell to third parties. Your information is kept confidential. It is only used within those programs that require your information to communicate with you about the services you’ve requested. The bottom line: We’ll never sell your information and will only send you information about AbbVie, our products and Duopa.

Patient and Carer Peer Mentor Program Sponsor:

Duopa:

Yes. Speaking with a Duopa nurse is a great starting point after talking with your doctor. Nurses are available Monday—Friday at 1-844-4-DUOPA-1.1-844-4-DUOPA-1.

Use

DUOPA (carbidopa and levodopa) enteral suspension is a prescription medicine used for treatment of advanced Parkinson’s disease. DUOPA contains two medicines: carbidopa and levodopa.

Important Safety Information

What is the most important safety information I should know about DUOPA?

  • Stomach and intestine (gastrointestinal) problems and problems from the procedure you will need to have to receive DUOPA (gastrointestinal procedure-related problems) may occur. Some of these problems may require surgery and may lead to death.

Your healthcare provider will talk to you about the stoma procedure. Before the stoma procedure, tell your healthcare provider if you ever had a surgery or problems with your stomach.

Talk to your healthcare provider about what you need to do to care for your stoma.
After the procedure, you and your healthcare provider will need to regularly check the stoma for any signs of infection.

  • Symptoms of infection may include: drainage, redness, swelling, pain, or feeling of warmth around the small hole in your stomach wall (stoma).

Tell your healthcare provider right away if you have any of the following symptoms of stomach and intestine problems and gastrointestinal procedure-related problems: stomach (abdominal) pain; constipation that does not go away; nausea or vomiting; fever; blood in your stool; or a dark tarry stool.

Do not take DUOPA if you currently take or have recently taken (within 2 weeks) a medication for depression called a non-selective monoamine oxidase (MAO) inhibitor. Ask your healthcare provider or pharmacist if you are not sure if you take an MAO inhibitor.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Using DUOPA with certain other medicines, including medications for high blood pressure, MAO inhibitors, antipsychotics, metoclopramide, isoniazid, and iron or vitamin supplements, may cause serious side effects. High-protein foods may affect how DUOPA works. Tell your healthcare provider if you change your diet.

DUOPA may cause serious side effects. Talk to your doctor before starting DUOPA and while on DUOPA if you have had or have any of these:

  • Falling asleep during normal daily activities without warning. DUOPA may cause you to fall asleep while you are doing daily activities such as driving, which may result in an accident. This can happen as late as one year after starting DUOPA. Do not drive or operate machinery until you know how DUOPA affects you. Tell your healthcare provider if you take medicines that can make you sleepy, such as sleep medicines, antidepressants, or antipsychotics.

  • Low blood pressure when you stand or sit up quickly. After you have been sitting or lying down, stand up slowly to help reduce dizziness, nausea, sweating, or fainting until you know how DUOPA affects you.

  • Seeing, hearing, or feeling things that are not real (hallucinations).

  • Unusual urges. Some people taking medicines for Parkinson’s disease, including DUOPA, have reported urges such as excessive gambling, compulsive eating, compulsive shopping, and increased sex drive.

  • Depression and suicide. DUOPA can cause or worsen depression. Pay close attention to changes in your mood, behavior, thoughts, or feelings. Call your healthcare provider right away if you feel depressed or have thoughts of suicide.

  • Uncontrolled sudden movements (dyskinesia). If you have new dyskinesia or your dyskinesia gets worse, tell your healthcare provider. This may be a sign that your dose of DUOPA or other Parkinson’s medicines may need to be adjusted.

  • Progressive weakness or numbness or loss of sensation in the fingers or feet (neuropathy).

  • Heart attack or other heart problems. Tell your healthcare provider if you have experienced increased blood pressure, a fast or irregular heartbeat, or chest pain.

  • Parkinson's disease patients are at an increased risk of developing melanoma, a form of skin cancer. See your healthcare provider for regular skin examinations when taking DUOPA.

  • Abnormal blood tests. DUOPA may cause changes in certain blood tests, especially certain hormone and kidney blood tests.

  • Worsening of the increased pressure in your eyes (glaucoma). The pressure in your eyes should be checked after starting DUOPA.

Do not stop using DUOPA or change your dose unless you are told to do so by your healthcare provider. Tell your healthcare provider if you develop withdrawal symptoms such as fever, confusion, or severe muscle stiffness.

The most common side effects of DUOPA include: complications of tubing placement procedure, swelling of legs and feet, nausea, high blood pressure (hypertension), depression, and mouth and throat pain.

Please see the full Prescribing Information including Medication Guide for additional information about DUOPA. Talk to your healthcare provider if you have questions.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.1-800-FDA-1088.

If you cannot afford your medication, contact www.pparx.org for assistance.

Important Safety Information

What is the most important safety information I should know about DUOPA?

  • Stomach and intestine (gastrointestinal) problems and problems from the procedure you will need to have to receive DUOPA (gastrointestinal procedure-related problems) may occur. Some of these problems may require surgery and may lead to death.