It’s easy to find a Mentor who will be happy to speak with you.
Just select a few key details, and you’ll find potential Mentor matches.
Hi, my name is Barb. My husband and I first noticed his symptoms of Parkinson’s disease during a trip to California in fall 2006, and he was officially diagnosed with the condition the following year. I was shocked by the diagnosis and it was difficult for me to watch him experience a roller coaster of symptoms. We worked with his doctor to develop a treatment plan for his motor fluctuations. My advice for other patients and caregivers is pretty simple: don’t get discouraged. I want to share our experiences with other patients and their carers.
Hello, my name is Barbara. I first noticed problems with my mobility in 1986, but I was misdiagnosed for years. It wasn’t until 1994 that I was diagnosed with Parkinson’s disease after I sought out a neurologist. I didn’t know what to expect from with the disease. My husband, Ernie, and I did a lot of research about Parkinson’s and talked to my doctor to develop a new treatment plan. After my own positive experience with the Peer Mentor Program, I am excited to share my Parkinson’s story as a Mentor myself.
Hello, I’m Bill. I first noticed symptoms of Parkinson’s disease in 2009, when I struggled to keep my water bottle from tipping during my morning walks with my wife, Nancy. I knew it was time to see a doctor when I also started to have difficulty combing my hair and noticed a pain in my legs. I was eventually diagnosed with Parkinson’s in 2010. Nancy and I remained positive in the face of this diagnosis, but I know dealing with this disease can be emotional. As my symptoms progressed, Nancy and I worked with my doctor to find a treatment plan to address my motor fluctuations, and I’m glad I’ve found something that works for me. Nancy and I hope to connect with other patients and caregivers, as our journey with Parkinson’s has brought us closer together.
Hi, my name is Bill. I was diagnosed with Parkinson’s disease in 2007 after my golf game started to suffer and I was having difficulty typing. Throughout my years with the disease, I’ve connected with other patients, and I’m always happy to talk about my experiences. My wife and I are active in organizations in our community, and I still enjoy playing golf.
Hello, my name is Chip. My wife Jackie was diagnosed with Parkinson’s disease in 1992 when she was just 42 years old. We didn’t know much about Parkinson’s at the time, but we’ve spent many years learning as much as we can from our doctors and joining community support groups. We work hard to stay positive, and we hope to pass some of that positivity on to other patients and their caregivers.
Hi, I’m Cindy. My husband Dale was diagnosed with Parkinson’s disease in 2012, but we think he may have been experiencing symptoms for more than a year before that. We were a bit relieved to have an explanation for his limping and trembling, but the diagnosis brought mixed emotions. We became very involved in our local Parkinson’s support group. Over time, Dale's movement disorder specialist made changes to his treatment plan and after several years, we discussed Duopa as an option. Now we hope to share our experiences to support other patients and their caregivers.
Hello, I’m Dale. After a shoulder surgery in 2011, I felt a trembling in my pinky that I now realize was my first symptom of Parkinson’s disease. After noticing my arm wasn’t swinging normally and a limp on my right side in 2012, I went to see a movement disorder specialist who officially diagnosed me with PD. I took the diagnosis in stride, and decided I wanted to help others by starting a support group for others also diagnosed with the disease. My doctor continued to reassess my treatment as my disease progressed. Over time, my doctor modified my treatment plan and after several years, we talked about Duopa as an option. I’m eager to share my PD experiences with others.
Hi, I’m Dan. My wife Pam was diagnosed with Parkinson’s disease in 2001, though she had been experiencing symptoms for years, including difficulty using her hands. We were devastated by the diagnosis at first, but her symptoms progressed slowly, and we’ve worked hard to remain positive. As her symptoms became more severe, we worked with a movement disorder specialist to find a treatment plan to manage her motor fluctuations. Now, we hope that our story can help other patients and carers learn how to manage their journey with Parkinson’s and maintain an optimistic outlook.
Hello, my name is Debra, and I am from Wisconsin. I first experienced symptoms of Parkinson’s disease in my early 30s. I worked in a cafeteria and I noticed shakiness in my hands which caused me to drop dishes. I had trouble finding a doctor who was familiar with the disease in my area, so it took me over a year to get an official diagnosis. I look forward to being able to help other Parkinson’s disease patients and their carers.
Hello, I’m Dennis. In the spring of 2014, I noticed that my left leg dragged behind my right, but at first I thought I just needed a chiropractic adjustment. I started to suspect that the problem was neurological when I also felt a slowness in my left arm. I was diagnosed with Parkinson’s disease that same year after making an appointment with a neurologist. Over the years, my symptoms were manageable, but after a while, I started to recognize a fluctuation between my on and off periods. My wife and I moved from Ohio to Kentucky, and I found a new neurologist and a nursing assistant who reviewed my treatment options with me. Now, I want to pass on my knowledge about Parkinson’s, as well as a few words of encouragement, to other patients.
Hi, my name is Diana. When my husband was diagnosed with Parkinson’s disease I did not know what to expect. It was hard to see him get so frustrated with his body and our days were increasingly hard to plan. I was happy to support him whenever he needed me but learned that I needed to take care of myself as well. While we have faced many challenges, his diagnosis brought us closer together. I hope to help other carers by sharing my knowledge with them.
Hi, my name is Dianne. I enjoy books and movies. I first started experiencing symptoms of Parkinson’s disease after a motorcycle accident in 1998, but I thought the lack of mobility and tremors in my arm were a result of the accident. My symptoms continued to progress until I was diagnosed with Parkinson’s in 2010. I worked with my doctor to develop a treatment plan for my motor fluctuations. I’m looking forward to sharing my experiences with Parkinson’s disease to help other patients and caregivers.
Hello, my name is Don, and I am a caregiver to my wife. My wife’s early onset of Parkinson’s disease symptoms started us on a long and trying path of obtaining an official diagnosis. Our persistence has helped us make informed decisions and motivated us to share our experience to help educate others.
Hello, my name is Ellen. I have been an emergency room nurse for many years. My husband, John, has Parkinson's Disease and I have been caring for him ever since he was first diagnosed in 2002. Although John is extremely independent, my role as a caregiver mostly comes in maintaining the positive attitude we both find to be so important. Thankfully we are still able to enjoy the activities we have always enjoyed, such as going on hikes and traveling. I hope to encourage others to maintain positivity along the way.
Hi, my name is Ernie. My wife Barbara was diagnosed with Parkinson’s disease in 1994, but she had first started experiencing symptoms, including problems with her mobility, eight years before. Barbara struggled with continued symptoms, so her neurologist determined an appropriate treatment for her motor fluctuations. Together, we are excited to share our journey with Parkinson’s and speak with others impacted by the disease.
Hello, my name is George. I was diagnosed in 2002 after I noticed a tremor in my hand and difference in my swing during a golf game. Before my symptoms progressed, I worked as a psychologist. But eventually, my energy for travel and interacting with patients diminished, which forced me to stop working and playing golf. My wife and I enjoy spending time together and I have recently begun to play chess and bridge.
Hello, my name is Glenda. I am a retired nurse and a carer for my husband who was diagnosed in 2002 with Parkinson’s disease. My main responsibilities now include helping him maintain a healthier lifestyle and reminding him to take his medications. While we are not able to enjoy many of the hobbies we did before his diagnosis, we are encouraged by the support we have around us.
Hi, my name is Gloria. My husband, Thomas, was diagnosed with Parkinson’s disease in 2007 after he noticed an unusual twitch in his finger. His disease began to significantly impact his life and motor functions. His neurologist prescribed a treatment plan that works well for him. Although I’m a dedicated caregiver to Thomas, I make sure to take the time to focus on my hobbies, like knitting and crocheting, too. I want to help other families by sharing our journey with Parkinson's with them
Hello, my name is Helyn, and I am from Illinois. In 2006 I started to have visible symptoms of tremors which alarmed me and my loved ones. I brushed off the symptoms until I realized my tremors had become so severe that they were hard to ignore. I was diagnosed with Parkinson’s disease in 2014 by my neurologist. I’ve realized the importance of having hope and being positive. I still enjoy the hobbies I always have done like crafting, baking and reading.
Hello, my name is Jim. Before I was diagnosed with Parkinson’s disease, I noticed that my handwriting had become cramped and forced. After my wife, Barb, noticed that my arm was not swinging while walking during a vacation in California, I made an appointment with a neurologist and was diagnosed with Parkinson’s disease in 2007. Over the next few years, I experienced a variety of symptoms like dyskinesia and trouble sleeping and I had to give up many of my favorite activities, like biking. In working closely with my doctor, I’ve been fortunate to find a treatment plan for my motor fluctuations that allows me to be more involved in my life, and now I hope to share my story to help other patients and caregivers.
Hello, my name is John. I am a former middle school teacher and currently work as a part-time administrative assistant at a nursing center. I love to go hiking and traveling with my wife to go see our children and grandchildren. In 2002, I started to notice a general stiffness throughout the right side of my body which eventually forced me to retire from teaching. I hope that I can help others maintain a positive attitude and provide insight into living with Parkinson's disease every day.
Hello, my name is Judith. I am a former music teacher, and I enjoy singing and arranging music. In 1990, I began to feel a limpness in my left arm and leg, and my husband was alarmed when he noticed that my arm wasn’t swinging when I walked. My symptoms continued to progress until I was diagnosed with Parkinson’s disease in 1994. I was shocked because I thought that at age 49 I was too young to have the condition. But I’ve worked hard to stay positive and to live life as normal a life as possible while working with my doctor to find the right treatment plan for my motor fluctuations. I look forward to sharing my story and positive attitude with other Parkinson’s patients.
Hi, my name is Kay. My husband Bill was diagnosed with Parkinson’s disease in 2007. He’s pretty independent, but I help him manage his medication and do all the cooking at home. We both enjoy taking part in community organizations and our local Parkinson’s disease support group, and spending time with friends. I also make glass beads and travel to Austin to babysit my granddaughters.
Hello, my name is Linda. Along with caring for my husband who was diagnosed with Parkinson’s disease in 1997, I am a mother and grandmother and enjoy traveling and photography. Through the experience of being a carer, I have learned how to be more patient and flexible to his changing needs.
Hello, my name is Margaret. I love to garden and cook, but my very favorite thing to do is spend time with my husband. I was officially diagnosed with Parkinson’s disease in 2012. I continue to enjoy the time I spend with my husband and look forward to sharing my experiences with others.
Hi, my name is Mark. I was working as a construction engineer when I began to feel rigidity in my neck and back. I tried acupuncture, massage, physical therapy, and many more things to combat my symptoms. When I didn’t see any improvements, I sought out testing with my doctor which led to my Parkinson’s disease diagnosis in 2010. I was actually relieved to have a diagnosis and an answer for what was causing my symptoms. Later, when oral medications did not offer long-lasting symptom relief, I worked with my doctor to find a treatment plan for my motor fluctuations. Now, I’m hoping that my story can be of some help to other patients.
Hello, my name is Maureen and I live in Florida. After a surgery that I had in 2003, my surgeon recommended I see a neurologist since she noticed I was shaking during the procedure. I didn’t believe my symptoms could be due to anything serious, but I followed her advice and saw a neurologist who diagnosed me with Parkinson’s disease. Since my diagnosis I have tried to stay positive and continue to get the most out of life.
Hello there, my name is Nancy. My husband, Bill, was diagnosed with Parkinson’s disease in 2010 after we noticed he was having some difficulties with his coordination and a feeling of pain in his legs. Bill managed his symptoms and “put on a good show for several years until his advanced Parkinson’s disease increased in severity. We worked with his doctor to find a new treatment plan that helps manage his motor fluctuations, and now we hope to share our positive outlook with other patients and caregivers.
Hello, my name is Nancy. My husband was diagnosed with Parkinson’s disease in 2008. Since his diagnosis, I have been by his side as his care partner, a job I’m more than happy to take on. It’s been hard seeing the effects of this progressive disease on him, but together we have the strength to face the challenges that come our way. I hope that I can provide the insight I’ve learned about advanced Parkinson’s disease with other patients and caregivers and offer a source of support.